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End Of CYC (Cyclophosphamide) IV Treatment For Lupus Nephritis
by
esther goh
Calificación: 4.0
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%20was%20over.%20It%20ended%20on%2011%20August%202014,%20but%20was%20the%20most%20painful%20one%20that%20I%20encountered%20in%20the%20haematology%20centre.%20Before%20the%20therapy%20start,%20the%20nurse%20will%20insert%20a%20needle%20with%20small%20tube%20into%20my%20vein%20for%20letting%20the%20medicine%20to%20pass%20through%20the%20bloodstream.%20Unfortunately,%20the%20job%20was%20not%20properly%20done%20and%20a%20%22big%20bump%22%20was%20formed%20on%20my%20hand%20(sign%20of%20back%20flow).%20She%20quickly%20removed%20the%20needle%20and%20another%20nurse%20assisting%20to%20re-do%20the%20needle%20insertion%20on%20my%20the%20other%20hand.%20During%20the%20process,%20I%20felt%20a%20sharp%20poky%20pain.%20I%20started%20to%20sweat%20as%20I'm%20phobia%20to%20needle%20and%20blood.%20I%20almost%20wanted%20to%20give%20her%20a%20loud%20thunder%20roar%20but%20didn't.%20I%20never%20encounter%20such%20a%20lousy%20skill%20before!%3C/p%3E%3Cp%3EThe%20Treatment%3C/p%3E%3Cp%3EDuring%20the%20treatment,%20I%20was%20given%20250mg%20Mesna%20first%20(for%20protect%20my%20bladder),%20followed%20by%20low%20dose%20CYC%20(cyclophosphamide)%20500mg%20IV%20(30%20minutes%20over)%20and%20finally%20%20another%20250mg%20Mesna%20(2%20hours%20later%20after%20CYC)%20for%20every%20two%20weeks%20x%206%20times.%3C/p%3E%3Cp%3EThe%20Side%20Effects%3C/p%3E%3Cp%3EEach%20time%20when%20I%20completed%20one%20session,%20my%20legs%20become%20very%20weak.%20The%20impact%20will%20be%20greater%20on%20the%202nd%20and%203rd%20day%20after%20the%20therapy.%20My%20body%20felt%20weaker%20with%20stiff%20joints%20especially%20on%20my%20knee%20and%20spine.%20I%20can't%20bend%20down%20my%20knee%20and%20will%20hear%20a%20loud%20%22cracking%22%20sound%20when%20squatting.%20I%20can%20feel%20the%20tightness%20on%20my%20spine%20as%20if%20metal%20rod%20was%20tied%20onto%20it%20to%20make%20it%20tighter%20and%20stiffer%20and%20sensing%20of%20back%20pain%20at%20times.%20I%20just%20feel%20like%20I%20am%20%22humpty%20dumpty%22%20when%20the%20pair%20of%20%22jelly%22%20legs%20start%20to%20wobble.%3C/p%3E%3Cp%3EAnother%20constant%20night%20mare%20was%20hair%20loss.%20I%20have%20lost%20a%20considerable%20amount%20of%20hair%20and%20saw%20strands%20of%20dropping%20hairs%20on%20pillow,%20floor,%20bathroom%20etc.%20My%20boy%20could%20even%20notice%20the%20clumps%20of%20hairs%20on%20the%20bathroom's%20floor%20trap%20and%20had%20questioned%20me%20who%20its%20%20belong%20to?%20I%20was%20quite%20sad%20with%20the%20drastic%20change%20in%20my%20appearance.%20I%20hate%20glancing%20at%20the%20mirror%20with%20that%20big%20moon%20face,%20thinning%20hair%20look%20and%20sign%20of%20bald%20patch%20at%20the%20back%20of%20the%20head.%20I%20had%20gained%20a%20lot%20of%20weight%20recently.%20My%20boy%20had%20noticed%20my%20fat%20tummy%20and%20commented%20that%20I%20have%20become%20fatter.%20I%20must%20say%20%22thank%20you%22%20to%20prednisone%20for%20pumping%20me%20up%20like%20a%20balloon.%20Not%20only%20my%20appearance,%20the%20medication%20had%20also%20affected%20my%20mood%20whereby%20I%20get%20irritable%20easily%20and%20my%20mood%20can%20swing%20like%20roller%20coaster.%3C/p%3E%3Cp%3EI'm%20hopeful%20that%20I%20can%20return%20to%20the%20same%20old%20me%20soon%20and%20my%20hair%20will%20grow%20back%20in%20few%20months%20times.%20At%20this%20point,%20I%20am%20trying%20hard%20to%20step%20down%20my%20prednisone%20dosage%20(from%20initial%2040mg%20to%20now,%2018mg).%20At%20least,%20the%20good%20new%20is%20there%20were%20sign%20of%20improvement%20after%20these%20treatment.%20From%20the%20test%20result,%20it%20shows%20that%20no%20more%20blood%20%20appeared%20in%20my%20urine%20and%20protein%20in%20the%20urine%20had%20significantly%20reduced%20to%20normal%20level.%3C/p%3E%3Cp%3EMy%20nephrologist%20had%20commented%20that%20he%20will%20start%20me%20off%20next%20week%20with%20%22MMF%20-%20the%20immunosuppressive%20drugs%20which%20I%20never%20try%20before.%20I%20am%20hopeful%20that%20the%20maintenance%20phase%20will%20turn%20out%20well%20and%20I%20can%20continue%20to%20eliminate%20prednisolone%20to%20%22zero%22%20phase.%20Another%20worry%20is%20the%20medical%20bill,%20hearing%20that%20MMF%20is%20an%20expensive%20medication.%20Looks%20like%20the%20hole%20in%20my%20pocket%20will%20get%20bigger!%3C/p%3E){kind=link}